Monday, April 23, 2012

SWAB DAY!!!!!!!


IT'S MY BE THE MATCH SWAB DAY!!!

Today was the day!!!  My donation packet arrived and I was ready to swab!  
It was easy breezy and would have taken about 5 minutes if I wasn't taking pictures!
My wish is to inspire at least one person to follow me in joining the registry and maybe, just maybe one day save someone's life!  



To start...the envelope! 
4 little things.
4 items in the envelope!
They included.....
1. A letter welcoming me to Be The Match and a thank you for joining.
2. A booklet filled with Be The Match information.
3. The Swab Kit.
4. A paid postage return envelope for the samples!
And Thats IT!!!


You are sent 4 large pre-packaged Q-Tip swabs, 4 sticker bar codes, and a container to hold your samples.


So one at a time, you take a swab, swallow and rub it on the inside of your cheek for 10 seconds! 
So 40 seconds of mouth swabbing and I was done!
You put a bar code sticker on each swab, and into the holder they go! 
Done!


So that's it! 
In the envelope my samples went and off to the mail box!


It should take about 2 months for my swabs to be processed and then I will officially receive my donation card!  
In case you were wondering, our sweet little pup Ruca has to be involved in everything we do so she showed her support by keeping me company and watching the whole process! Don't worry she didn't come close to my samples!  She loves Mom too so I thought it was fitting for her to be right next to me!  

So there it is! I am so excited and so proud to be given the opportunity to possibly have a chance to give someone else a chance at living! 
Joining the registry is easy and free!  If it wasn't for people on the registry, my Mom's chances of finding a stem cell donor would have been almost 0.  
I encourage you to join the registry, or find a fundraiser to participate in, or just start spreading the word that transplant patients need to be given more and more chances at survival.

Mom, this was for you and for all of the patients out there waiting for a donor.
It's one small thing of many I can do, but it's a start. 
I pray that I will be asked to donate sometime in my life.
Everyone deserves a miracle or second chance at life and I hope that one day I can be a part of giving that!

For more information on joining the registry click HERE!!!!!


























Saturday, April 21, 2012

Dear Kiersten.



I wanted to dedicate today's post to a girl named Kiersten that lost her battle to Leukemia 2 days ago.  She was a seventh grade young girl with a bright spirit and immeasurable strength. 
I didn't know Kiersten or her family, but she was a part of my school community and will be missed by many students and staff. 
The loss of Kiersten hit very close to home.
It forced me to go back and question basically everything...
Why was my Mom given a miracle?
Why was this Mom's destiny? Kiersten's?

Where do I find the peace in today? 
Where do I find peace for Kiersten's family?
Has my faith diminished? Has Kiersten's families?
I pray for them to find peace in their loss.
I pray for them to find the faith that their daughter is resting peacefully and now watching over them from the clouds above.
I am thankful for Mom's miracle..I'm thankful that she was given a second chance at life.
I am thankful for my hopes becoming reality.
I am thankful for this life I get to live every day, and for each and every experience I have lived through. 

Kiersten, though we did not know one another, know that you have a special place in my heart. 
Your fight will forever be a part of me, and I will continue to honor your memory each and every day.
I know you are no longer walking on this earth, but I know you can feel the sunshine today and see the love that surrounded you until the end. 
May your spirit live on through each and every one of us.
Rest in peace little one, rest in peace. 


Saturday, April 14, 2012

Beauty of the day...







Roses How To Here!


Happy Weekend!
I hope this weekend you have the chance to do something good for you!
For me, its art...crafts...creating...whatever you want to call it.
Creating beautiful things reminds me to do good things for myself. 
 It brings me peace, and control, and a sense of quiet in my crazy world. 
I hope you can de-stress today...find time to take care of yourself and take a deep breath.
I hope you can find beauty in your day in whatever form it comes in!

Thursday, April 12, 2012

Bring it on baby!!



I saw this picture on Pinterest the other day and I thought "wow, how true is that!"  
For all of us that were affected by Mom's illness...for all of you out there surviving through your own journey, this is true! 

This journey of Cancer, has been traumatic to say the least, but it has also been quite an eye opening experience. I think it has reminded us that life is precious and short...and that you need to cherish your loved ones and the time that you have with them.  
There were times when Mom was in the ICU and all I would do was pray for just one more day with her, one more moment...for one more memory, or conversation, or smile...I remember thinking back to our "rocky" past during my teen years and regretting how much I didn't appreciate having her in my life, or appreciate the things she always did for me.  
As I've gotten older, I've worked through with myself and her those years that are now behind us..but when her survival...or chance of survival was our reality,  I couldn't help but go back to those emotions.  Now at the "outcome" after this journey of Cancer, I cherish even more than ever every single minute I get to spend with her...every single conversation we have...each and every "back to life normal" event she accomplishes and I get to witness..I cherish it all.
This journey has made me realize that I needed to slow down, that life needed to slow down a bit so that I could appreciate what was in front of me everyday.  
The transition back to "normal" life...or the outcome now has been hard for us all I think. 
We..I, are learning a new way of life..a new way to live really and it is scary.  I don't think any of us can really go back to what life was like before.  We've learned to truly not take life for granted, and we are getting a chance to start over. 
I still don't know what the outcome for us all is going to be. 
Maybe there never will be an outcome..maybe we are always just living through a journey.
Which ever way it is, I welcome it all with open arms.  I welcome the chance to live each and every day and be thankful for my life and will continue to embrace this second chance at life we have all received. 

Moving forward I know there will always be bumps in the road, challenges I may have to fight like hell to overcome..heartache and tears...lessons learned..missed opportunities..memories made, good and bad...chances to take...fears to face...
I guess those are all things we do every day right??? Well this time around I'll be more prepared and  ready to look each and every one of those things in the face and say bring it on!!!

Monday, April 9, 2012

Be The Match

To learn more about joining the Be The Match registry, click here!


Since Mom's diagnosis I have been waiting to find the time to sign up to be a donor on Be The Match!  She was a patient that needed a bone marrow transplant, and our first step was finding a potential donor! 

 
Signing up to be a donor is a 2 step process if you go through the Be The Match website.
Step one is filling out the pretty short personal health history, setting up a contribution if you are wanting to do so, and providing your own information to recieve the donation kit! 


Here are some commonly asked questions about becoming a donor.  You can of course find more information by going to their website here.

(all information is provided by Be The Match)

Q: Why is there a need for people to join the Be The Match Registry?
A: Thousands of patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases depend on the Be The Match Registry® to find a match to save their life.

Q: Why are younger donors preferred? A: If you are between the ages of 18 and 44, patients especially need you. When more than one potential donor is a good HLA match for a patient, doctors will also consider other factors, including the donor’s age. Research shows that cells from younger donors lead to more successful transplants. That's because younger donors produce more and higher-quality cells than older donors.
However, if you are between the ages of 18 and 60, meet health guidelines and are willing to donate to any patient in need, you are still welcome to join the registry.

Q: What is a bone marrow transplant?
A: Bone marrow transplant is a life-saving treatment for people with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. First, patients undergo chemotherapy and sometimes radiation to destroy their diseased marrow. Then a donor's healthy blood-forming cells are given directly into the patient's bloodstream, where they can begin to function and multiply.
For a patient's body to accept these healthy cells, the patient needs a donor who is a close match. Seventy percent of patients do not have a donor in their family and depend on the Be The Match Registry to find an unrelated bone marrow donor or umbilical cord blood.

Q: How do I become a bone marrow donor?
A: The first step to become a bone marrow donor is to join the Be The Match Registry. Doctors around the world search our registry to find a match for their patients. If a doctor selects you as a match for a patient, you may be asked to donate bone marrow or cells from circulating blood (called PBSC donation).

Q: What is my commitment if I join?
A: When you join the Be The Match Registry, you make a commitment to:
Be listed on the registry until your 61st birthday, unless you ask to be removed.
Consider donating to any searching patient who matches you.
Keep us updated if your address changes, you have significant health changes or you change your mind about being a donor.
Respond quickly if you are contacted as a potential match for a patient
You have the right to change your mind about being a donor at any time. Donating is always voluntary.

Q: If I join the Be The Match Registry, how likely is it that I will donate to someone?
A: On average, one in every 540 members of Be The Match Registry in the United States will go on to donate bone marrow or peripheral blood stem cells to a patient. We cannot predict the likelihood that an individual member will donate because there is so much diversity in the population. However, if you are between the ages of 18 and 44, you are 10 times more likely to be called as a marrow donor than other members of the Be The Match Registry. That's because research shows cells from younger donors lead to more successful transplants.
Every person who joins the registry gives patients hope, and new patient searches begin every day. You may never be identified as a match for someone, or you might be one of a number of potential matches. But you may also be the only one on the registry who can save a particular patient's life.

Some Common Facts and Myths about Bone Marrow Donation:

MYTH: Donating is painful and involves a long recovery.

FACT: There can be uncomfortable but short-lived side effects of donating PBSC. Due to taking a drug called filgrastim for five days leading up to donation, PBSC donors may have headaches, joint or muscle aches, or fatigue. PBSC donors are typically back to their normal routine in one to two days.

MYTH:  Donating is dangerous and weakens the donor.

FACT: Though no medical procedure is without risk, there are rarely any long-term side effects. Be The Match® carefully prescreens all donors to ensure they are healthy and the procedure is safe for them. We also provide support and information every step of the way. 
Because only five percent or less of a donor's marrow is needed to save the patient's life, the donor's immune system stays strong and the cells replace themselves within four to six weeks.
 
MYTH: Donors have to pay to donate.
 
FACT: Donors never pay to donate. We reimburse travel costs and may reimburse other costs on a case-by-case basis.
 
 
My Mom needed a bone marrow transplant, and because of people that have signed up to be part of the registry, she had the opportunity of at least 40 donors that were a potentional match.  That's not very many, but she at least had the option!  Many patients are continuing to wait for a potential match!  You could save someone's life by joining the registry!  It's easy and free (they do ask for a contribution, but in case that is not possible for you to do, you can still sign up!), and it's as easy as swabbing your mouth with a Q-Tip! 
 
I will be updating when I get my swab kit to show you just how easy it is! 
What a blessing it would be to be called on to donate my stem cells and save someone's life!  I was a witness to how important it is to have a registry of donors waiting to be a match.  Just knowing that someone out there was able to save my Mom's life makes me want to give back and be able to do the same for someone else! 
 
Join today and lets fight the fight together! 

Sunday, April 8, 2012

Happy Day!

I realized last week after my last post, that I was a bit lost.  I was so lost in my own thoughts and emotions about the past that I wasn't focusing on the here and now.  
I had a session with my therapist (yes therapist...I'm just putting it out there...), and we talked a lot about why I was in fact focusing on the past.  I told her how I started a blog, and that recently I felt stuck writing and was avoiding it in some ways.  
Why?  Why was I avoiding it?  
 I hate when she asks me the tough questions.  
Why am I forcing myself to go back to a place that was painful and scary? 
Who was I doing it for? Me? You? Mom? January? Friends? Family? The Husband?
I didn't know.  I don't know. 
I think I felt like I had to in that moment go back to the days of struggling to be able to move forward.  I'm pretty sure she thought I was crazy! 
I'm stuck moving forward because I don't think I'm ready to share the events of Mom's transplant and what happened afterwards.  I'm not wanting to hide the fact that she was given a second chance at life, but I'm just not ready to go back.
Right now, I'm needing to focus on today.  On what's happening right now. 
We are all getting back to life.  We are all finally finding our way back to normal, and I need to take advantage of that and not worry so much about going back.  The time for that will come and there is no need to force it right?  










So here I am today.  Easter Sunday.  
I woke up feeling great and ready for the day!  
I got up and took some pictures of my favorite things today
They are snapshots of the things that make me want to live in the here and now! 

So, let me explain....!!!!

Arts Garden.
Every time I step outside my back door, I have the pleasure of looking at one of the most beautiful gardens on the block!  I love the stages it goes through as the seasons change and as each day goes by...

Ruca.
The second love of my life. She brightens my day..brings me laughter and joy....she knows all my secrets and faults and loves me anyways...she is therapy...she is hope...and she is a reminder that there is more to life than the worry that faces me each and every day.....

The Orange Bracelet.
It's my reminder to be strong...to fight the fight...to advocate...to share the story...
It keeps me close to Mom...to the memories of how close we were to losing her....
It keeps me awake and holds me close to the life I was blessed to live....

The Little House That Could.
We found this sweet little house in our yard when we moved in. 
I can't seem to part with it! 
It reminds me of how proud I am of the work Dan and I have done to give ourselves a home we love.  It lets me wonder about a past that was unknown to me..but makes me want to built memories of our own.....

Marbles.
I love creating little things for the people in my world! 
I've been making marble magnets and I am in love with them!  
They simply make me happy! 

Dan. 
The first love of my life. 
He keeps me safe, and grounded and brings me back down to earth when I begin to fade....he is my strength, my best friend, my laughter, my hope....he makes me want to make it all okay, and is the reason I keep holding on.  
I will be forever in love with him and forever grateful that he loves me unconditionally! 


So today my wish for you and me is that we can live in the moment...and enjoy the sunshine and be thankful for each and every memory we make today! 
Happy Easter! Happy Day! Happy Sunshine! 



Wednesday, April 4, 2012

Holding On



So I'm needing to apologize for my lack of posts lately.
I guess I can say I've been in a writing rut.
I had spring break last week, and it was one of the best weeks I have had in eleven months.

Eleven months.
Eleven months ago today since diagnosis.

i just have to pause for a minute. 


I think part of the writing rut comes from the fact that for the first time in eleven months things are good.
Like really good.  And I haven't wanted to go back to the place where things weren't good.

I don't want to go back to the feelings of hopelessness, and sadness, and anxiety, and stress, and worry, and guilt, and loneliness, and helplessness, and pain, and frustration.

I don't want to remember spending hours alone in the car sitting in traffic going back and  forth from the hospital and being jealous and resentful that no one else in my life can possibly understand what I'm going through, or living through the motions of what my life is like everday....I don't want to go back to the feelings of guilt I had for even feeling that way.

I don't want to go back to the days of not knowing how to help Mom, and not knowing what to say to make it better.  Or witnessing her frustration with not feeling good every single minute of every day..and not knowing what was going to happen next.

I don't want to go back to the many heartbreaking conversations between January and I about how to help Mom live her best life when the nightmare is over.

I don't want to go back to the life of having lost control of my own life because I have to be the strong one and pick up the pieces in everyone else's life....

Please universe let me stay right here where we all are now...
Let Mom stay strong and continue to make progress in living her best life.
Let life continue to fall into a place of normalcy.
Please let us all continue to find the shine within us!!!


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